What is the difference between informational self-determination and contextual integrity? Give a health example.

Informational self-determination is a person's right to decide for themselves about disclosing and using their data. Contextual integrity says data, once shared, may only be used in line with the context and intention in which it was shared.

Informational self-determination (informationelle Selbstbestimmung) is a bundle of rights:

• right to information about what is stored,
• right to correct facts,
• right to hand over (export) the data,
• right to withdraw consent to use,
• right to deletion.

Contextual integrity (kontextuelle Integrität) covers what happens after the person has said yes. Example: someone gives personal health data to medical research, and the decisive motive is to help others. If the same data is later used to tailor insurance offers and maximise profit, it no longer matches the original intention, and the contextual integrity of the information is violated, even though the data was handed over voluntarily.

So consent at collection is not the end of the story: the first principle governs the decision to share, the second governs where the data may flow afterwards.

Go deeper:

• Wikipedia: Contextual integrity — Helen Nissenbaum's framework of context-bound information norms.
• Wikipedia: Informational self-determination — the German constitutional origin of the concept (census ruling, 1983).